I hate them with a passion. They are scary and horrible and cruel. Megan has lost so much due to her seizure disorder it is not fair. She has stopped for the most part her drop seizures and now she is back to the big bad ones. I am talking lasting over 2 minutes, lips turning blue, body shaking, drooling, loss of body functions, and brain damage.
Megan had one just a bit ago, one last night, 3 Monday before last, one the Sunday before last, and one Saturday before last. That is 7 hard seizures within the last 12 days. Her body can not keep taking these nor can her brain.
There is nothing I can do when she has a seizure but be there besides her and reassure her. Make sure to keep her safe the best I can.
People ask me why I do not work outside the home. When I say Megan needs me no one understands what I mean. I am the one to give Megan her meds 3 times a day. I am the one here that does all her Dr. and dental appointments. I am the Mommy that she never had.
I am going to try and video her when she has a seizure so you can all understand how hard it is. Think of you child being at deaths door basically 24/7 and not knowing when your last day with them will be. Knowing that they fall at the drop of a hat, that they can not say if they hurt or where they hurt, that they can not say anything but hung, dawinnnk, daaad, red, on, blu. Oh and you have to know what they means by their few little words. Or when a big word pops back into their precious minds and they say it how you get so excited. How getting a hug and a kiss and the MMMMM mmmmm MMMMM sound means I love you can bring you to tears.